Some people say that Social media is a waste of time and only used by people who don’t have anything better to do with their time. I would have to tick the strongly disagree box on this matter. I have found social media sites, especially Twitter to be a fantastic place to make friends and share pictures and stories about life and,especially for me, a way of giving a glimpse of what it is like to have a child with a disability and share the laughs and tears along the way.
Being a parent of a child like Melissa can be a very lonely place, wow, did I actually write that down, maybe I should delete it or should I leave it in , lets leave it in and see where it leads. I don’t use Twitter as a way of gaining sympathy or use it as a platform to hold myself up as some kind of superhero, But as a way of raising awareness of Angelman syndrome and hopefully show parents especially those with a recent diagnosis of AS that although,you may not see it at present, there is a way forward and you can still enjoy every aspect of life. At first, I know because I experienced it too, you go through almost a grieving process, crying for all the things your beautiful child will never have, for me it was Melissa going out with her friends giggling about which boy she likes then, dating, having a career, getting married, having children of her own, all of these and more possible events. Even now I still cry for my lovely girl and I know as she gets older there will be many more tears. But as well as the tears there are so many reasons to smile and laugh, Melissa has brought so much joy to our lives and I very happy to say she is helping to bring joy into other people’s lives too through her Tweets and smiley pictures. It is so lovely to read comments such as; “You have made my day much brighter” and “I am smiling too now Melissa” This is definitely a two-way street as their lovely messages help to cheer me too.
I have also been fortunate enough to have had the opportunity to get to know some pretty amazing people kind, caring, generous folk who will respond to my , sometimes random mad tweets with a like or kind comment. For those of you who don’t have a Twitter account Melissa has over 10.5k followers, most of whom we have never met and as a good many of them are from overseas or at either end of the country, we probably will never meet, but it doesn’t matter as we all know that if support is needed it is only a Tweet away.